We're back in the hospital room after his spinal tap. He has to lay flat for about 4 hours so the insertion area can close so he doesn't leak spinal fluid. We should be able to leave at 1:30 as long as his vitals are fine and he doesn't develop side effects (headaches other than the headaches he already has).
To give people an idea of his routine now he mostly stays in bed all day. He has absolutely no energy and the most activity he's capable of is leaving the house for procedures. The approximately 10 cm mass on his throat will not go away until he has chemo so swallowing is very difficult and painful. The mass is pressing into his larynx so his voice goes in and out.
The tests he has Monday afternoon (CT and MUGA scans) are painless but tedious.
I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com
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