I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Friday, July 30, 2010

Chris at home

Chris got released at about noon today from the hospital. The car ride wasn't too much fun for him and he ended up puking a bit when we got home. He's sleeping now.

Overall he's exhausted and nauseous but I'm glad he's sleeping in his own bed at home. His Dr says his blood counts look good.

They sent him home with 5 scripts and thankfully the CCK (Cancer Center of Kansas) is helping me get cheaper versions of some and assistance for some others. 

He'll need to get a shot to boost his white blood cells everyday until he's back in the hospital for his next treatment in about 2 weeks. He's scheduled for blood draws every Monday to check his levels. He'll be getting another spinal tap on Monday also. He'll be going back to the hospital for his 2nd chemo treatment around the 16th of August. 

The spinal taps are to check to make sure the cancer hasn't spread and to also give him preventative chemo in his spine. He's had one so far and will have 2-3 a month for the next 5-6 months. 

Chris' mom left for Texas this morning and took Magnus with her for a few weeks so Chris and I can figure out how he'll feel after these chemo treatments. I am so thankful to have someone we love and trust to take care of our little boy while we go through this process. It was very hard to see him go and I'll miss him more than words can express.

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