I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Monday, August 2, 2010

more chemo today

Chris was scheduled for a LP (Lumbar Puncture aka spinal tap) with chemo today. We checked in at the same hospital he left on Friday (St. Francis). There was some confusion as to whether he was having chemo or just getting spinal fluid taken so we were first taken up to the 5th floor and then moved to his old room in oncology on the 7th floor when radiology confirmed his chemo order. 
Oddly his room on the 5th floor was the same room he was in when we went there what seems like an eternity ago for his first of two biopsies to test for cancer. 
While on the 5th floor he got his picc line cleaned and re-dressed and his chest was x-rayed to make sure the line was still going into his heart.
When we got back to oncology his old roommate was still there so they got to catch up. I left the hospital around 11 so Chris could get some rest before they took him down for his LP. He forgot his phone at home so I gave him mine so he can call me once he's back in his room resting.
He will have to lay flat for 4 hours after the procedure and then we'll go across the street to the cancer center so they can take his blood to check his levels (done every Monday) and give him the belly shot to boost his white blood cell count (done everyday until he's back in the hospital in about 2 weeks).
I switched one of my days off at work so I can be at home with him tonight. When he first got home from the hospital on Friday he wasn't feeling that great but his appetite starting coming back Saturday.
I made a spreadsheet so I can keep track of when he's taken what pills (he has 6 different ones) and when his next dose is and how much food he's eating. 
He didn't get much sleep last night and the tedium of waiting and checking on orders got on his nerves this morning. Unfortunately he's got lots more of this ahead of him. 
I'll head back to the hospital soon when he calls and bring him a snack too - he isn't allowed to eat after midnight the night before his LP's so he's ravenous.

No comments:

Post a Comment