I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Wednesday, August 18, 2010

surgery today for Hickman

Chris is scheduled for surgery today at 2 to get a Hickman to replace his picc line.  Here's a wiki link if you are dying of curiosity and want more info on a Hickman: http://en.wikipedia.org/wiki/Hickman_line
Chris won't be released until Friday since his last dose of one of his meds isn't until Thursday night and he'll need to have his blood levels checked the next day.  
He's doing ok, mostly very tired.  This place is not good at all for rest.  There are personnel in the room at least every hour checking him or his roommate 24 hours a day.  He'll fall asleep and then someone has to come in and give him more meds or check his vitals or do the same for his roommate.  He's tired of being here and I can't blame him one bit.
I took tonight and tomorrow night off of work in anticipation of him maybe being released but I'll go in instead and switch my FMLA requests for Friday and Saturday.  
Hopefully his levels are good enough and we won't have to come in over the weekend for WBC shots. But this type of chemo usually knocks the counts down pretty good before they get built back up so I'm counting on us making trips across town Saturday and Sunday.
He'll be back at the hospital on Monday for his outpatient LP chemo.  From check in to discharge we are usually here about 8 hours for that.  

**Edit**
It's 2:15 p.m. and his surgeon just came out to talk to me.  He said it was tough to get the line in because the veins in Chris' neck are small, maybe due to the lymphoma.  So he did it a more traditional way thru the top of his chest.  Chris is ok and I will see him once they call the desk here in the waiting room and then we'll head back up to his room.  

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