I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Monday, November 22, 2010

Chris home from round 4

Chris got home a bit ago from the hospital!  His Dr. came to see him at 5:30 this morning and said his counts today are excellent and that he has done well with this round.  (I asked for a copy of his counts but they didn't have the ability to print them out for me at the nurses station so I will get a copy from his doctor.  However his nurse did tell us his WBC was over 8, very high for him!!)  Chris will have his blood counts checked Wednesday and we will meet with his doctor as well.
Chris is back on all the anti-fungal, antibiotics, and anti-mouth sore meds as well.  He had a dose of IV Zofran (nausea medication) right before he left today.
I went over all the infection precautions with his nurse and she recommended he wear a mask when he is in public.  If Chris feels well enough we plan to go to his parents for Thanksgiving.  He will need to wear a mask when we are there since Magnus, like all kids, are germ donkeys.  Perhaps we will draw a festive mustache on it, ha!
I fed him and he will probably go to sleep soon since he didn't get much sleep last night at the hospital.  
He will be at risk for neutropenia about a week from now, when the main chemo drug he was given (methotrexate) reaches it's "nadir".    

I'm glad he is home from the hospital!  We are starting to get used to all our new surroundings.  I finally went grocery shopping for the first here time this morning.  

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