I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Wednesday, December 1, 2010

scans, transfusions, and antibiotics oh my!

I may be a bit slap-happy with my odd hours of sleep since last night so bear with me.

He is now situated in room 366, it's large and agreeable so far.  His nurse is still getting all the info on him so there will probably be some activity in and out for awhile.
He has had 2 units of blood transfused so far, one more to go.  He also will be getting platelets.  
They did a head CT on him earlier today to make sure there is no internal bleeding, a concern since his platelets are so low.
Two nurses in the ER last night tried to access his powerport with 3 different needles but were unable to.  The powerport was what he had inserted on the 18th.  It is a way for them to be able to give him chemo, antibiotics, etc without having to continually hook him up to IV's.  For whatever reason they can't access it so he's had an IV in his arm.  Around 3 a.m. they attempted to get another IV going in his right arm (he can't have any IV's in his left arm due to his brain injury) but after trying 3 different sites they couldn't do that either.  A few hours ago they were able to access another vein in his right arm so he has two IV's there now.  At some point today they are supposed to attempt to figure out how to access the powerport so he doesn't have to have all these IV's in his arm which make sleeping very difficult.  
He is napping right now.
I don't know how long he will be in the hospital, I am guessing at least a week.  If you look at the past entries on here to August 26th to September 2nd that is the time when he was neutropenic from this same round of chemo before.  This is called the "B" round of his hyper-cvad chemo regimen and is typically the toughest on his body due to the high doses of methotrexate.
His oncologist, Dr. Kampe, came in to see him this morning and said that his low counts are obviously a concern but it also indicates that the chemo drugs are working.
So in addition to the blood and platelets he is getting IV antibiotics, continuing his home meds, and a shot to help boost the production of white blood cells.  
He will be getting blood draws daily to check his counts which I will update on here as I get them.

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