I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Wednesday, February 9, 2011

probably getting released today


Chris got moved back to the leukemia unit G16 on Saturday so it was good to be back in a large room.  His hospital room is bigger than our hotel room by far!  
It's been a rough stay with some painful side effects and having the low platelets and blood counts prolongs the recovery from them.  The staff here continues to be wonderful.
I went to donate blood at the MD Anderson blood bank on Sunday with a new friend, Lori, who donated platelets.  All blood products donate at the MD Anderson blood bank go directly to help patients there.  They are experiencing a shortage of blood products because of the recent winter weather.  I've encouraged anyone in the Houston area to please go donate blood products.  Chris has had blood and platelets or just platelet transfusions everyday for at least the last week.  
We will have appointments everyday for the next week or so at MD Anderson for a combination of IV meds, blood draws, and doctor appointments.
He is scheduled to have a bone marrow biopsy towards the end of next week, the results of that biopsy will help determine if this augmented chemo regimen is getting him into remission.  After the biopsy and other tests are done his doctor, Dr. Thomas, will determine the next step in his treatment.  
I'm sure there were other things I wanted to share but right now I can't think of them.  
He is scheduled to get released today.  Before we can go he needs a platelet transfusion and also we have to wait until his schedule is set up for tomorrow and the next few days.  When he was released last Monday it took until nearly 4 p.m. to get his schedule set up so we are having that time frame in mind for getting out today too.  


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