I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
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Friday, February 11, 2011

some good news - LP's clear!


Yesterday Chris awoke with more energy than I've seen him with in over a month.  At his Dr.'s appointment we found out his last 2 lumbar punctures were negative for leukemia cells!!  
This means he only has to have one lumbar puncture with chemo a week instead of 2!  Because his type of leukemia (ALL) is so aggressive he still has to have them once a week for the next 4 weeks.  
And his counts are slowly climbing - yesterday was the first day in something like 2 weeks that he didn't have to have blood and platelet transfusions!!  
I took this picture of him when we were at one of the trans units for his IV anti-fungal and antibiotic treatments.  Chris is on a special antibiotic because when he was admitted for neutropenia they found a blood infection but the antibiotic was successful in treating it and the last 3 tests have shown up negative for it.
He has daily appointments at MD Anderson for the next 10 days.  Hopefully by this time next week we will get some information about whether or not the augmented hyper-cvad chemo regimen is working to put him into remission.
He doesn't have any appointments until 3 this afternoon so he got to sleep in for the first time in a long time!


5 comments:

  1. Not to be too forward but He's just as cute as a bug's ear!

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  2. Lookin' good kid! I still need to give you a proper hair cut though...LOL! Much love bro...Cec!

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  3. Yay! I'm so glad to hear the good news :)

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  4. This is great news!! So happy to see him smiling again!
    <3 Stephanie

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