I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Thursday, September 30, 2010

today's counts

hris went to the cancer center today for blood draw and GM shot.  I didn't go in because I'm feeling under the weather and didn't want to share my germs with other patients.  I'm sleeping in Magnus' bed until while Chris' counts are low and I'm feeling a bit froggy in the throat. 
Anyway Chris shows me his counts and they are lower than they were yesterday when he was released from the hospital so I call and talk to Dr. C's nurse Patti.  She says she is going to talk to Dr. C and that Chris definitely has to get the shots tomorrow and Saturday and he probably won't be starting his next round Monday.  We are going to talk to Dr. C tomorrow or Monday for more info.  
The numbers that matter the most are the neutrophils and absolute neutrophils.  Because his absolute neutrophils we 1.48 yesterday he was able to go home for the hospital.  I do not know why they went down so much between yesterday and today, that's something we are asking about.  

Here are some links to some info about neutrophils for those who are interested:

Even tho this dance with trying to get his neutrophils up is typical of his cancer and treatment it's pretty frustrating.  His Dr. was telling us that until the GM-CSF shots were developed about 10 years ago there was nothing they could do to help patients counts go up in between rounds and the process was much much longer.  
When he goes in tomorrow morning for his blood draw for counts and shot we will get some more answers to questions I have.  

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