I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Friday, January 14, 2011

long day, PET scan done

Chris starting puking at midnight and it continued off and on until 7 a.m.  I checked his temperature around 9:30 and it was 101.4 so we went into the Emergency Care clinic at MD Anderson.
Thankfully his temperature went away and his blood counts didn't come back low - meaning no neutropenia.  They released him around 2:30 with a prescription for another antibiotic (he's currently on 3) and in time for us to make it to his PET scan appointment.
It's a huge complex of medical buildings here and thankfully they have a skywalk that connects the ones affiliated with MD Anderson together.  We got on a little shuttle that drove us across the skybridge to the building where the PET scan was done.
Chris has been extremely fatigued so he spent most of the day in a wheelchair.  We got back to the hotel around 5.  If he has a fever again he will have to go back to the Emergency Care Clinic and they will admit him.
Chris doesn't have another appointment until Tuesday morning but we decided to stay here rather than drive back and forth from Austin over the weekend.  The Leukemia clinic is closed on Monday in observance of Martin Luther King day.
Hopefully he doesn't get a fever and can just rest up before the tests next week.
So far his schedule is as follows (more may be added later):
Tuesday: blood draw and afternoon appointment with Dr. Thomas
Wednesday: open for now
Thursday: Bone marrow biopsy and brain MRI

So we won't be headed back to Austin for about a week.  Chris' dad's birthday is Monday and Magnus' birthday is Tuesday; we're planning to celebrate them whenever we get back into town.

It's been a long day at all new places with little sleep - Chris is already snoring and I'm going to do the same shortly.
Hopefully there won't be any more updates until Tuesday evening!

No comments:

Post a Comment