I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Thursday, January 13, 2011

no real news yet, more tests to come


It was a long day at MD Anderson; we arrived at 9 and left close to 6.  They are a very busy facility and so our appointments were all running behind.  We had most of our appointments in the Leukemia clinic; here is a rough outline of our day:
9:00 arrival at MD Anderson
9:30 meeting with patient care specialist for new patient paperwork
10:15 nursing assessment (this was very thorough!)  
11:30 blood collection
12:00 chest xray
from about 12:30 until 3:30 Chris slept on a couch in the "quiet room" on the 2nd floor while I ate some Vietnamese soup in the cafeteria and helped one of the hospital volunteers with a large puzzle of Texas.  
It was about a 45 minute wait to see his Dr.  First we spoke with another Dr. that works with her, whose name I can't recall.  They were very thorough with all the history they took of Chris and asks lots of questions.  I updated his blood count spreadsheet below.  His counts are quite good; but he has been feeling very fatigued these last few days.  Dr. Thomas is ordering a bone marrow biopsy, PET scan, heart echo, and brain MRI.  I don't know which tests he will have tomorrow, we have to wait for the nurse to call us in the morning to let us know.  He will more than likely have some of these tests done next week as well.  We will meet with Dr. Thomas again on Tuesday afternoon.
So not much news so far, just more tests so that Dr. Thomas can get all data possible about what is going on with Chris and give us her diagnosis.  

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