I was Chris' wife/caregiver & this is the medical blog I wrote during his treatment. Short history: dx in July 2010, no initial bone marrow involvement, did 5 rounds hyper-cvad protocol. Found out he is in relapse/refractory status with involvement in his chest, spleen, inguinal & throat lymph nodes, bone marrow, spine & brain in January 2011 when we went to MD Anderson for treatment. The two different rounds of chemo Chris got at MDA could not put him in remission; he died of leukemia/lymphoma on March 18th, 2011, an astonishing and horrific 8 months after his diagnosis.
There is a donation page for organizations here: http://chriscranecancer.blogspot.com

Sunday, January 16, 2011

saw Dr. on call

Just saw the Dr. and she said right now they don't know what is going on with him.  He hasn't had any more high fevers but he is continuing to have severe headaches, numbness on half of his lips, and today his left arm has become very painful.
The results from the PET scan are not back yet, since he had it on late Friday.  The Dr. said that the PET scan includes a CT of the head and that if anything abnormal appeared on it during the test they would need to report it, and nothing was reported.
He is still very fatigued.
He has mouth sores and no appetite.
Ordering a CT now is not necessary, it would be having something done just for the sake of doing something.  Nothing we can do but wait.
The Dr. on call is going to talk to Dr. thomas and see if the other tests ordered for him (bone marrow biopsy and brain MRI) that are scheduled for Thursday can be expedited.
So for now they are going to continue to treat him for the fever he came in for and give him antibiotics.  Unless something changes (tests results show something new or he has new symptoms/problems) they will continue giving him antibiotics and pain medication.  His blood has been taken for cultures to check for infection, so far they are negative.

1 comment:

  1. Hi Amanda,

    We are thinking of you and hoping for the best. Thanks for keeping us posted.

    love,
    emily

    ReplyDelete